The Power of the Patient Voice
People living with dermatological conditions face stigma, shame and other psychosocial challenges in addition to the physical symptoms of their disease. The International Alliance of Dermatology Patient Organizations (IADPO) is committed to ensuring the patient voice is clearly heard by health authorities, policy makers and payers around the globe.
IADPO’s advocacy efforts focus on:
- Initiating dialogue and advocating for access to new and existing treatments, and dermatological care to improve patients’ quality of life; and
- Raising the awareness of the incidence of, and the challenges for, people living with serious dermatological diseases to create better understanding.
IADPO’s two-level approach to advocacy:
Patient organizations are typically a trusted voice amongst government officials, private payers and the public in their home country or region. IADPO empowers your patient organization to advocate in your country or region by strengthening your advocacy capacity through training, mentoring, tools and supportive data.
Representing its members, IADPO has been appealing as one voice to the World Health Organization and other key global influencers to recognize the debilitating nature of many dermatological diseases so that more resources are forthcoming for research and treatment options.