Members e-Learning

GlobalSkin is committed to supporting its members through unique learning opportunities. As part of this effort, we host Members’ Only e-Learning sessions four times per year.

Session topics are based on needs and interests communicated to us through member surveys. Each session includes a 45-minute presentation with 15-minutes for group discussion. Join us to share your own experiences and bring your questions for the presenter. 

The presenter and slides will be visible on the videoconference.  You can follow along, choosing to share your video if you wish, when participating in discussion.

Upcoming e-Learning Sessions:

E Learning

Nothing about Us without Us – Patient Engagement and Research

Thursday, March 26, 2020, 11:00 am EST  (16:00 CET)*

Presenter: Bernd Arents, Dutch Association for People with Atopic Eczema

Patient engagement in health research and health care delivery is essential. This webinar will cover the Why, Where and How of patient engagement.  

Bernd will illustrate his journey in patient advocacy and patient engagement, e.g. in reviews, guideline development and as Patient Associate Editor at the British Journal of Dermatology and discuss concrete ideas on where to start and what it might take. 

Bernd Arents has severe atopic dermatitis since birth and is active for the Dutch Association for People with Atopic Dermatitis (VMCE) since 1996. He is currently focusing solely on patient advocacy, after having served on the board as secretary (3 years) and president (7 years). Patient engagement is his passion.

If you are an IADPO Member - Register to attend

If you or someone you know is interested in sharing expertise on skin patient organization best practices, by leading a session for our members, please contact This email address is being protected from spambots. You need JavaScript enabled to view it..

GRIDD Webinar Series

Based on results from the Members Needs Assessment survey later this spring, we will be developing a GRIDD webinar series for Members. This five-part series will cover all phases of the GRIDD project starting in late spring 2020. The webinars will align with project milestones that will take place in 2020 - 2022. Keep updated on all the webinars by visiting Members e-Learning. All webinars will be recorded and available for future viewing.

 

Recordings of past e-Learning Sessions:

Sessions are available in the Members-only Area  - you must log in to access the videos. 

Global Reseach on the Impact of Dermatological Diseases (GRIDD) Project: Why It Matters for GlobalSkin Members and Their Patients, Presenters: Executive Director, Jennifer Austin, and our PhD Researcher, Rachael Pattinson. December 10, 2019

Grassroots Advocacy for Skin Disease—Getting There from Unaware—Presenter: Kelly Barta, Manager, Grassroots Advocacy, NEA.  October 23, 2019.

Qualitative Research to Enhance Depth of Understanding—Presenter: Shona Fleming, Member Experience Lead, International Alliance of Dermatology Patient Organizations (IADPO), also known as GlobalSkin. March 27, 2019.

Questionnaire Design—Key to Collecting Useful Survey Data—Presenter: Jennifer Austin, Executive Director, International Alliance of Dermatology Patient Organizations (IADPO), also known as GlobalSkin. February 5, 2019.

Power of Patient-led Research—Presenter: Christine Janus, CEO and founder, International Alliance of Dermatology Patient Organizations (IADPO), also known as GlobalSkin, November 20, 2018.

Strategies for Enhancing & Leveraging our Relationships with local Dermatologist — Why & How—Presenter: Marc Yale, Executive Director, International Pemphigus and Pemphigoid Foundation (IPPF), IADPO Member <only slides are available>, June 20, 2018.

Key Components of Successful Websites—Presenter: Karey Gauthier, Director of Communications and Marketing at the National Eczema Association (NEA), IADPO Member, May 14, 2018.

Effective Communications and Outreach Strategies—Presenter: Helen Crawford, Manager of Social Media, Programs, Governance & Logistics at Canadian Skin Patient Alliance (CSPA), IADPO Member & Canadian Association of Psoriasis Patients (CAPP), March 28, 2018.

Fundraising Tools and Methods—Presenter: Jean Pickford, President of Pickpoint LLC and Executive Director of Basal Cell Carcinoma Nevus Syndrome (BCCNS) Life Support Network and Cicatricial Alopecia Research Foundation (CARF), IADPO Member, January 22, 2018.

Advocacy—Presenter: Christine Janus, CEO and founder, the International Alliance of Dermatology Patient Organizations (IADPO), also known as GlobalSkin, November 15, 2017.