From November 9 to 11, GlobalSkin CEO Jennifer Austin took part in the 11th PeDRA Annual Conference in Atlanta, Georgia — aimed at advancing research for the well-being of children and adolescents with skin conditions.

At the conference, Jennifer participated in discussions with the PeDRA Patient Advisory Committee, engaged with GlobalSkin Members and booth visitors, and presented on the GRIDD Study. A poster complementing the presentation highlighted the GRIDD project, offering attendees valuable insights into PRIDD, a newly developed impact measure in dermatology.

On November 16, GlobalSkin CEO Jennifer Austin spoke at La Roche Posay's Derm Live in Paris about combating the stigma around skin conditions. She highlighted the crucial role of patient organizations in providing holistic care and stressed the need for collaboration in transforming healthcare for those with skin conditions.

In addition, Jennifer had the opportunity to connect with various key individuals in dermatological advocacy. These interactions facilitated meaningful discussions and proved to be another vital step in strengthening the network championing for dermatology patients.

On October 30, GlobalSkin participated in the Rare Disease International Member meeting, which took place in conjunction with the World Orphan Drug Congress in Barcelona, Spain. This gathering served as a great opportunity for members of the GlobalSkin RareDERM Community to interact with our organization and establish meaningful connections. The meeting paved the way for collaboration, dialogue and exchange of insights, thereby fortifying the bonds driving our commitment to Rare Disease advocacy and support.

The call for 2024 Impact Fund applications launched on November 8 and closed November 10 following overwhelming interest from Members. Project applications have now been reviewed and approved. We are pleased to support 43 projects in 28 countries and across 17 disease areas. Of the 43 approved projects, 23 organizations were also awarded additional funding to complete Skin Cancer Prevention and Awareness projects. Thank you all for your hard work and commitment to improving the lives of those affected by dermatological conditions. We wish you success in the implementation of your initiatives throughout 2024 and look forward to seeing them come to life!

Click here to read a summary of several 2023 Impact Fund projects.

The Patient Expert Scholarship is an exclusive microgrant program that financially supports our patient leaders to take part in the EUPATI Patient Expert Training Program. On October 26, the 2022-2023 GlobalSkin Patient Expert Scholarship recipients graduated from the EUPATI Patient Expert Training Programme at an event held Prague, Czech Republic. As part of the programme, the five graduating patient advocates acquired a thorough grasp of the medicines development process and the crucial involvement of patients in every stage. We congratulate the 2023 cohort on this achievement!

Learn more about the 2023 graduates and the 2024 cohort.

On October 4, GlobalSkin seized an exciting opportunity to meet with Stella Kyriakides, the EU Commissioner for Health. The online meeting served as a platform for us to brief the Commissioner on challenges faced by dermatology patients in Europe and pinpoint areas where the European Commission could enhance efforts to address these issues more effectively. Additionally, the meeting allowed GlobalSkin to highlight patient concerns and collaborate with the European Commission to strategize improvements. Commissioner Kyriakides expressed optimism, stating that this would be the first of her meetings with us and the next one should be in person.

The 32nd EADV Congress was held in Berlin, Germany from October 11 to 14. Among our representatives were Board Directors Marc Yale and David McMahon, as well as senior GlobalSkin staff Visnja Zaborski Breton, Tammi Shipowick, Allison FitzGerald, Jakub Sadocha, and Yalchin Mammadov. Alongside various Member organizations also in attendance, we highlighted the patient perspective throughout the Congress.

Our impact was evident in the meaningful exchanges we had with doctors, stakeholders, dermatology societies, and the audience at a variety of events organized by GlobalSkin as part of the Congress. Learn more here.

GlobalSkin participated in an EADV-organized event at the European Parliament addressing "The Burden of Skin Disease in Europe". Co-hosted by various Members of the European Parliament, the event emphasized the widespread prevalence of skin diseases in the European population. The EADV Call to Action on Chronic Inflammatory Skin Disease was also presented at the event and signed by GlobalSkin along with 23 other organizations. It urges the EU, Member States, and stakeholder organizations to commit to driving positive change in the field of chronic inflammatory skin diseases across various priority areas. Click here for details.

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