Events Listing

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Did we miss one?

Please send us your organization's awareness day or upcoming event! Contact us to have your awareness day conference listed here.

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  • GlobalSkin-Europe Coffee Chat – May 9, 2024 (link to be emailed soon)

  • GlobalSkin AGM – June 19, 2024 - 11:00 EST (link coming soon)

  • Youth Patient Leaders Coffee Chat – May date TBA

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Rare Drug Development Symposium (Philadelphia)
April 29 – May 1, 2024
https://globalgenes.org/event/rare-disease-drug-development/

The RARE Drug Development Symposium, hosted by Global Genes and the Orphan Disease Center of the University of Pennsylvania, equips advocates with the knowledge, skills and connections they need to advance therapy development for their communities. This year’s theme is Innovative Ideas from Next Generation Change-Makers.

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World Congress of Dermatology 2023

GlobalSkin attended the 25th World Congress of Dermatology (WCD) which took place in July 2023, in Singapore. Jennifer Austin, GlobalSkin CEO was an active participant on the Scientific Program Planning Committee for this prestigious event. 
 
Highlights of GlobalSkin’s involvement include:  

  • Keynote by Marc Yale, GlobalSkin Board President  
  • Jennifer Austin chaired an expert forum (with co-chairs, GlobalSkin Board Member Dr. Inena Wa Inena, and GlobalSkin Member Kelly Capozza) on “Patients as partners in advancing dermatology through research and advocacy” 
  • Two oral presentations on the GRIDD project 
  • Participated in the Patient & Dermatology Community Village 
  • Co-hosted with DEBRA International a multi-stakeholder side event 
  • Met with patient organizations located in Asia 
  • Hosted a Skin Matters reception…and more!    

The ILDS offered Patient Organizations the opportunity to exhibiting in the WCD2023 Patient & Dermatology Community Village. Patient Organizations were invited to book a complimentary booth which included three badges with full access to the scientific sessions. 

Read the summary of the event here.

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EADV Congress 2023

The 32nd EADV Congress is taking place from 11-14 October 2023 in Berlin.  GlobalSkin looks forward to being present at the Congress, where we along with many Member organizations will bring the patient perspective to the forefront. We will network with doctors and specialists as well as industry partners.  We are also planning several events that you will be invited to attend.  

 Please mark your calendars:  

  • GlobalSkin-Europe Community Workshop “Building Stronger Bonds: Fostering Effective Partnerships between Patient Organizations and Pharma Industry”: October 11, 14:30-16:30. This event will be facilitated by Dr. Tamás Bereczki, a renowned partner, consultant, and trainer in the patient-led and focused strategic advisory «Patvocates». Dr. Bereczki also serves as the course coordinator, content developer, and a trainer of EUPATI. 
    Please RSVP for the event HERE (Open to patient organization members only)

  • GlobalSkin Skin Matters Reception: October 11, 17:30-19:30 Wilmina Hotel   
    Please RSVP Here (Open to all GlobalSkin stakeholders)

  • Co-organized GlobalSkin-EADV Session: How collaboration improves access to care, October 12, 8:30-10:00 Room: M6+7

  • EADV Patient Advocacy Task Force Meeting

  • GlobalSkin Booth - Patient Organization Area – October 11 – 14

  • GRIDD Research project poster - E-Poster Area - October 11-14

 For more information or questions, please contact This email address is being protected from spambots. You need JavaScript enabled to view it.