Member Impact Project Updates
2021 has already been an incredible year of accomplishments for our Members. Around the globe, Patient Leaders and their Organizations have been working hard on initiatives that further their causes and we're happy to start highlighting projects that have been completed through the support of the GlobalSkin Member Impact Fund.
AADA (Asociación de Afectados por la Dermatitis Atópica)
The AADA (Asociación de Afectados por la Dermatitis Atópica), Spain used the Impact Fund to write and produce a narrated children's story which they've made into a video featured on YouTube.
It is the story of a small fire-breathing dragon named Flare (Picón), that struggles with his uncontrollable flames. As the story unfolds, the dragon manages to turn his challenges into something positive.
Vitiligo Support and Research Group - Vitamigos (Cuba)
Through GlobalSkin's Member Impact Fund, the Vitiligo Support and Research Group hosted a Workshop on, "The Psychological and Social Impacts on Dermatology Patients with Vitiligo and Psoriasis" which took place on December 22, 2020 in the venue of a theater near Holguin City, Cuba.
There were 85 participants, including patients, family, doctors, and psychologists. The event held 10 presentations covering several different topics, all related to the Psychological and Social Impacts on Dermatology Patients with Vitiligo and Psoriasis.
International Pemphigus & Pemphigoid Foundation
The International Pemphigus & Pemphigoid Foundation was seeking to develop a more global footprint for its activities in advocacy and patient support. The Member Impact Fund has allowed this organization to appoint a new patient leader and develop him as their first Regional Director, to establish a support group in Kenya that could then be used as the basis for expansion and development to other countries in Africa.
Vereniging voor Icthyosis Netwerken
The Vereniging voor Icthyosis Netwerken organized an International Virtual Congress, "The International Netherton Congress THINC", for doctors, patients, and their families. This was the very first worldwide event for Netherton Syndrome, a rare disease, with only one in a million patients.
There were more than 90 participants from all over the world - 60 patients and caregivers, 30 Dermatology experts, and 2 pharma companies.
Through the GlobalSkin Impact Fund, the Vereniging voor Icthyosis Netwerken was also able to create a brand identity for the event with a dedicated website, published collateral, ads and articles.
About the Fund
This new GlobalSkin Member Impact Fund was created and launched in 2020 to financially assist Member organizations in the planning and implementation of activities supporting their dermatology patient-led initiatives and projects for the period of October 17, 2020 – June 30, 2021.
We invited grant applications from Full and Associate Member organizations that demonstrate how they will:
- Raise awareness of their disease(s)
- Support their patients
- Strengthen the work of their organization
Proposals that fell into one of four categories below were funded up to $2,000 CAD.
- Event Planning
- Communications & Marketing
- Organizational Development
The application timeframe has now closed. Thank you to everyone who applied.
Successful recipients have now been chosen.
2020 GlobalSkin Member Impact Fund Recipients
GlobalSkin is excited to have had so much interest in the Member Impact Fund Program. We are very pleased to be able to support the following Member organizations located in 14 different countries, 3 regions and 12 disease areas:
Canadian Skin Cancer Foundation – Canada (All disease areas)
CMTC-OVM – Netherlands (Lohuizen syndrome, which is also known as cutis marmorata telangiectatica congenita (CMTC-OVM)
Vitiligo Support and Research Group Vitamigos – Cuba (Vitiligo)
Eczema Outreach Support – UK (Atopic Eczema)
Genespoir – France (Albinism )
The National Foundation for Ectodermal Dysplasias – US (Ectodermal Dysplasias)
Naevus Global – International (Large Congenital Melanocytic Nevus (CMN)
DEBRA Croatia – Croatia (Epidermolysis Bullosa)
International Pemphigus & Pemphigoid Foundation – International (Pemphigus & Pemphigoid)
Vereniging voor Ichthyosis Netwerken – Netherlands (Icthyosis)
Skin and Allergic Disease – Russia (Autoimmune related skin disease / Atopic Eczema)
DEBRA South Africa – South Africa (Epidermolysis Bullosa)
Beyond Vitiligo – Sourth Africa (Vitiligo)
National Association for the Assistance and Support for Persons with Allergies, Celiac and Other Autoimmune Disorders – Serbia (Autoimmune disorders / Atopic Eczema)
Asociación de Afectados por la Dermatitis Atópica – AADA – Spain (Atopic Eczema)
Allergy UK – UK (Allergies / Atopic Eczema)
PEM Friends – UK (Pemphigus and Pemphigoid)
Atopic dermatitis association (Društvo atopijski dermatitis) – Slovenia (Atopic Eczema)
Canadian Psoriasis Network – Canada (Psoriasis)
Eczema Society of Kenya – Kenya (Atopic Eczema)
Allergy and Asthma Network – US (Allergies/Asthma/Atopic Eczema)
Institute Atopika – Slovenia (Atopic Eczema)
ITSAN – International (Topical Steroid Withdrawal)
Nevus Outreach – US (Large Congenital Melanocytic Nevus (CMN)
We look forward to highlighting all Member projects as they are completed!
Thank You to our GlobalSkin Member Impact Fund Partners - Bronze supporters AbbVie, Almirall, Amgen, LEO Pharma, Pfizer, Sanofi Genzyme Regeneron, UCB, and Contributor supporters Dermira and Galderma for providing Core support to GlobalSkin, which makes this Fund possible.