GlobalSkin-Europe supports GlobalSkin Member organizations located in this region in meaningful ways, like building organizational capacity, supporting member recruitment and advancing advocacy goals.
In order to pursue the strategic goals of our 105 European Members, this Community will be guided by a four-dimensioned approach of community building: Identify, Engage, Empower, Mobilise.
- Identify existing and potential patient organisations operating in Europe. Identifying skills, knowledge and resources among them. Identifying key issues as a basis for an aligned advocacy platform;
- Engage key actors, including patient organisations, decision-makers, and other stakeholders in dialogue and advocacy activities;
- Empower patient organisations via various capacity-building initiatives;
- Mobilise the Community by collecting or creating resources for advocacy, networking, and coordinating communications activities
This strategic approach must allow patient communities to organise their activities on a larger scale and in a more coordinated manner. Moreover, patient organisations would be reinforced in terms of capacity and European advocacy.
Representing Members on Key Committees
In 2023, GlobalSkin’s Senior Advisor-Europe, Yalchin Mammadov represented Members on these important committees where he brings the dermatology patient voice to the agenda.
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GlobalSkin Europe - Member Coffee Chats
One of GlobalSkin Europe's key initiatives is organizing regular Coffee Chats, providing a forum for its European community members to come together, share insights, and engage in meaningful discussions on topics relevant to their experiences and strategic objectives.
More dates coming in 2025!
GlobalSkin-Europe Discussion Topics
We invite our European Community Members to contribute to our discussion topics list. The more we learn about each other’s shared positions, the more we can support one another on specific issues at European policy tables. We are collecting our Member’s viewpoints on topics such as medicine shortages, telemedicine and artificial intelligence among others. We invite you to share your views on this form.
News
GlobalSkin's European Roundtable Featured in the JID
GlobalSkin is pleased to share that we have been published in the Journal of Investigative Dermatology. The published article is focused on GlobalSkin and ESDR co-hosted European roundtable titled "Addressing Under-Prioritized Skin Diseases: Policy Responses to High-Burden Conditions" which took place on February 6, 2024.
The publication highlights key policy recommendations formulated on the basis of the discussions held during the roundtable. These include prioritizing allocation of resources to mental health research in skin diseases, promoting awareness of the burden of skin diseases, simulating research initiatives, creating improved funding programs, addressing unmet medical needs (UMNs) and introducing data-driven health policies to provide comprehensive, sustainable solutions for those affected by these conditions. Read the article here.
GlobalSkin Promoted to Full Member of PCWP at the EMA
GlobalSkin has been nominated and accepted as a Full Member of the Patient and Consumer Working Party (PCWP) at the European Medicines Agency. This is a transition from our Observer Status held previously.
Yalchin Mammadov, Senior Advisor, Europe, is GlobalSkin’s representative at the PCWP. Karin Veldman from the Dutch Skin Association who is also member of the GlobalSkin-Europe Advisory Committee will be alternate member for this role.
We're extremely enthusiastic about our increased involvement in this major European regulatory body and are committed to contributing even more actively as Full Members of the PCWP.
GlobalSkin Meeting With EU Commissioner for Health
On October 4, 2023, GlobalSkin had an exciting opportunity to meet Stella Kyriakides, the EU Commissioner for Health. GlobalSkin was represented by Board Directors David McMahon and Tina Mesarič, GlobalSkin-Europe member Antoine Gliksohn, and staff Tammi Shipowick and Yalchin Mammadov. The online meeting served as a platform for GlobalSkin to brief the Commissioner on the difficulties faced by dermatology patients in Europe. It aimed to identify specific areas where the European Commission could intensify its efforts in order to tackle these issues more effectively. Moreover, this meeting provided an avenue for GlobalSkin to shed light on the concerns of dermatology patients and collaborate with the European Commission to strategize on ways to improve their situation. We look forward to strengthening this newfound and vital relationship.
Call to Action on Chronic Inflammatory Skin Disease
On October 24, 2023, the EADV launched a Call to Action on Chronic Inflammatory Skin Diseases. GlobalSkin together with 23 organizations, is a signatory of this important initiative. This collective Call to Action appeals to the European Union, Member States, and stakeholder organizations, urging them to commit to driving positive change in the field of chronic inflammatory skin diseases across various priority areas.
EADV Joint Statement on Skin Cancer Prevention
On February 4, 2022, World Skin Cancer Day, GlobalSkin joined together with 56 other organisations representing dermatology, oncology and other healthcare professionals as a signatory to the EADV Joint Statement on skin cancer prevention in the context of the European Union’s Beating Cancer Plan.
GlobalSkin's status with the EMA
GlobalSkin has successfully achieved the “eligible organization” status with the European Medicines Agency. This means that our organisation is now eligible to be involved in the Agency’s activities. Read more about the status here.
2024 Events
European Policy Online Roundtable by GlobalSkin & ESDR
On February 6, 2024, GlobalSkin and the European Society for Dermatological Research (ESDR) jointly hosted an online roundtable event titled "High-burden but Under-Researched: Policy Responses to Address Under-Prioritized Skin Diseases". The event aimed to respond to the European Union's 2023 Discussion Paper, "Scoping study on evidence to tackle high-burden under-researched medical conditions."
The roundtable convened experts, policymakers, and stakeholders from the dermatology and public health sectors. Notably, the event featured a Special Address by Stella Kyriakides, the European Commissioner for Health and Food Security. Several organizations, including the Dutch Skin Foundation, Institute for Health Services Research at the University Medical Center Hamburg, European Society for Dermatological Research, European Federation of Pharmaceutical Industries and Associations, and Parliamentary Research Services of the European Parliament, delivered insightful presentations.
2023 Events
GlobalSkin-Europe Member Event
On October 11, 2023 in the margins of the EADV Congress, GlobalSkin-Europe organized a workshop called Building Stronger Bonds: Fostering Effective Partnerships between Patient Organizations and Pharma Industry. This in-person workshop provided insights and strategies on how to build stronger partnerships between patient organizations and the pharmaceutical industry. A dozen individuals participated in the gathering, including representatives from GlobalSkin members and industry partners present in Berlin, and facilitated by Dr. Tamás Bereczki, a renowned partner, consultant, and trainer in the patient-led and focused strategic advisory “Patvocates,” as well as in EUPATI.
EADV Congress 2023
The 32nd EADV Congress was held in Berlin, Germany, October 11-14, 2023. Our delegation included Board Directors Marc Yale and David McMahon along with senior GlobalSkin staff Visnja Zaborski Breton, Tammi Shipowick, Allison FitzGerald, Strategic Partnerships Manager Jakub Sadocha and Senior Advisor-Europe Yalchin Mammadov. Together with many Member organizations, the team amplified the patient perspective at the Congress. Our presence was marked by meaningful interactions with doctors, stakeholders, dermatology societies, and attendees through a series of engaging events that resonated with attendees. We met with many funding partners for one-on-one meetings related to 2024 proposals.
Burden of Skin Disease in Europe
On October 24, GlobalSkin attended an event at the European Parliament in Brussels, The Burden of Skin Disease in Europe, where we together with 24 other organizations representing dermatologists and patients supported the EADV’s Call to Action on Chronic Inflammatory Skin Disease to call for more measures to tackle chronic inflammatory skin disease.
GlobalSkin was represented at the event by Board Director David McMahon, Irish Skin Foundation and Yalchin Mammadov, GlobalSkin Senior Advisor, Europe.
Past Events
Mobilizing for the Future
On January 27, 2022 members of the GlobalSkin-Europe Community came together to discuss the impacts of dermatology and to suggest ways to amplify its importance. Members were treated to a presentation about European data insights derived from the Delphi process of the Global Research on the Impact of Dermatological Diseases (GRIDD) project. A multi-stakeholder panel discussion followed the GRIDD presentation and participants took part in a focused conversation about the European Community Engagement Plan.
Pitching the Next Great Idea
GlobalSkin-Europe held its session “Pitching the Next Great Idea”, on September 7th in Milan. Approximately 15 GlobalSkin Member organizations were present, 10 of whom presented their innovative projects in the field of patient advocacy and capacity building.
GlobalSkin thanks everyone for their engagement and enthusiasm.
Putting Medical Dermatology on the EU Policy Agenda
On April 20, 2021 GlobalSkin, along with the EADV, organised a Multi-Stakeholder Roundtable event focusing on putting medical dermatology on the European health agenda. The participants reflected on the neglected importance of medical dermatology at the European level, underlining obstacles and opportunities. The Roundtable was attended by ERN Skin, patient leaders, nurses, clinicians, researchers, and industry. GlobalSkin-Europe Advisory Committee members Jaime Melancia and Annemarie Sluijmers were present at this meeting.
European Patients Leaders Forum
GlobalSkin brought together European dermatology patient leaders for roundtable discussions in January and March 2021. The Landscape Analysis, a document reflecting members’ needs and priorities, was used to lay the groundwork for the patient leader meetings. These facilitated events also contributed to capturing patient organization visions for the future and started the dialogue about the creation of a roadmap in this new region-specific, dermatology patient organization Community.
GlobalSkin-Europe Patient Leader Advisory Committee
Africa Luca de Tena
Asociación de Afectados por la Dermatitis Atópica - AADA
Spain
Annemarie Sluijmers
Lupus Europe
Netherlands
Antoine Gliksohn
Genespoir/Global Albinism Alliance
France
Gunter Van Dyck
Allergienet
Belgium
Jaime Melancia
Portugal
Karin Veldman
Ichthyosis - Netherlands
Netherlands
Isobel Davies
PEM – UK
UK
Špela Novak
Drustvo Atopijski Dermatitis
Slovenia
Tina Mesaric
Atopika
Slovenia
Please direct any questions about GlobalSkin-Europe to Yalchin Mammadov, GlobalSkin Special Advisor Europe.
Thank You to Our 2024 Partners:
