Atopic dermatitis (AD), also called atopic eczema, is a common chronic or recurrent inflammatory skin disease and affects 15-20% of children and 1-3% of adults worldwide. Patient organizations that serve people living with Atopic Eczema, provide essential services, support, access to information, opportunities to link with other patients and speak up for access to care and treatment. This is a disease where patient organizations are currently under-resourced and not well connected to each other.
GlobalSkin began working with this global community of leaders to significantly and measurably improve capacity building and coordination of a synchronized strategic approach to improve access to care, critical information, and treatment options for patients.
If you are the leader of a patient organization that supports people with Atopic Eczema, please contact This email address is being protected from spambots. You need JavaScript enabled to view it. for more information about joining this community.
Atopic Eczema Forum 2023
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GlobalSkin hosted our third Atopic Eczema Forum on June 1 in Brussels, preceding the ELEVATE 2023 Conference. The forum gathered 28 Members from 20 countries for a day of learning and connection. Members began the day gaining insight about their colleagues’ success stories with presentations from Global Parents for Eczema Research, Cronicos do Dia a Dia, Allergy and Asthma Network, Israeli Association for Atopic Dermatitis and the Eczema Society of Canada. The topics of these presentations included survey findings on Topical Steroid Withdrawal, Atopic Eczema Day in Brazil and Patient-Centred Care in Israel. The morning continued with Dr. Yael Leshem and an introduction to the Harmonising Outcome Measure in Eczema (HOME) project outlining the possibilities of better measurement of disease for patients with atopic eczema. The morning presentations can be found on the GlobalSkin website in the Members Only section. The afternoon of the forum was led by Professor Chris Bundy and Rach Hewitt providing a workshop on Shared-Decision Making between doctors and patients with the support of patient organizations. Presentations from the Forum can be found by visitng the Members Only Area and loging into your profile. |
Virtual Coffee Chats
Atopic Eczema Virtual Coffee Chats continue to keep Members connected and engaged in 2023. These quarterly facilitated sessions offer opportunities for real-time discussions on topics of the day.
The first Atopic Eczema Community Coffee Chat of 2023 will take place
Tuesday, February 14 at 10:00am-11:00am EST (4:00pm-5:00pm CET).
Watch your inbox for your invitation.
If you are a member and would like to join, please email our This email address is being protected from spambots. You need JavaScript enabled to view it..
The World Atopic Eczema Day 2022 Report
Read about our successful awareness day campaign and inspirational projects funded through the World Atopic Eczema Day Fund this year!
Revisit the World Atopic Eczema Day 2022 Campaign to learn more about this important awareness day.
Community Accomplishments
Landscape Analysis & GlobalSkin Narrative
World Atopic Eczema Day 2020
Patient Care Survey & Imperatives
Community Mobilization Workshop
Atopic Eczema Community's 3-Year Plan
GlobalSkin's work in the Atopic Eczema Community is guided by the Three-Year Atopic Eczema Community Strategic Plan.
This plan resulted from input from our membership including our Atopic Eczema Community Advisory Committee, the IADPO Executive Committee and the Atopic Eczema Community at large.
✔️ Building Community Capacity
✔️ Galvanizing Global Action
GlobalSkin has created an online platform for the Atopic Eczema Community (AltogetherEczema.org), where patients with eczema and atopic dermatitis, caregivers, and patient leaders can connect and find resources pertaining to their disease. The platform, launched in 2018, encourages visitors to take a short survey that aims to find out what it is really like to live with atopic eczema. The data will be used to help spark an international conversation on living with this skin disease and help to connect people who are suffering. Visitors can hear and share stories and discuss ways in which living with eczema and atopic dermatitis can be improved. A patient organization directory is also available that can provide patients with further support in their region.
Visit AltogetherEczema today!
World Atopic Eczema Day, an awareness day for atopic eczema, was launched by GlobalSkin and the global atopic eczema patient community in 2018.
September 14, 2020 marked the third annual World Atopic Eczema Day! Year over year, this awareness campaign has grown and brought to light to the many different aspects of this skin disease.
To learn more about past campaigns, read the reports below:
The World Atopic Eczema Day 2022
The World Atopic Eczema Day 2021
In June 2019, GlobalSkin hosted the Atopic Eczema Forum in Milan, Itlay which continued to galvenize this Community. Patient leaders participated in a 2 day event which was geared towards this specific disease area. Read more about the event and watch the event video.
Since Milan, this Community has been actively working on a variety of follow-up activities including an outcomes report; the formation of an Advisory Committee of patient organizations and the development the strategic plan.
The Community also has a dedicated online collaboration and connection space as part of GlobalSkin's Workplace which was launched following the Forum.
Community Resources
GlobalSkin co-sponsored an atopic dermatitis report with Pfizer which was published by The Economist Intelligence Unit on October 4, 2018. A misunderstood skin disease: Mapping the policy response to atopic dermatitis, analyses the healthcare system approaches to the management of AD by assessing 12 indicators across eight countries.
The release of this publication was marked by a live webinar that featured a panel discussion that included our CEO, Christine Janus. Read the news release and link to the report and watch the recorded webinar here.
Atopic Eczema Advisory Committee
Cheryl Talent - Eczema Assc. of Australasia, Australia
Tonya Winders - Allergy and Asthma Network, USA
Korey Capozza - Parents for Eczema Research, USA
Spela Novak - Drustvo Atopijski Dermatitis, Slovenia
Kelly Barta - Coalition for Skin Diseases, USA
Rachel Ogola - Eczema Society of Kenya, Kenya
Tina Mesaric - Atopika, Slovenia
Michele Guadalupe - National Eczema Assc., USA
Melanie Funk - Eczema Support Australia, Australia
Thank you to our Partners:
