Member Impact Fund - Gorlin Syndrome Alliance

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About 

Gorlin Syndrome Alliance evolved from the humble efforts of three determined patients and their desire to connect with others who had the same rare syndrome. It was through a series of cascading connections, referrals, and sheer compassion to help other Gorlin syndrome patients that this one-of-a-kind and invaluable organization was born.

Impact Fund Project

The "Jaunts with Julie" program is a seven-city tour where GSA’s Executive Director, Julie Breneiser, hosts small meetups in seven major cities to slowly bring the community together after a long hiatus. 

As one member recently said, “Nothing compares to the face-to-face, heart-to-heart, hug-to-hug effectiveness of being in person with our GS family.” The Member Impact Fund is important because it provided financial support to host these meetings.
 
The Biggest Success of the Project in Our Patient Community

Several patients and their families have been able to meet other patients and their families for the first time ever. The impact of developing a friendship with others who share the same rare disease is immeasurable.

"It's been so long since I've seen my Gorlin syndrome family. It feels good to be together again."

To learn more about this organization, please visit:

Website: www.gorlinsyndrome.org 

Facebook: hhttps://www.facebook.com/GorlinSyndromeAlliance

Instagram: https://www.instagram.com/gorlinsyndromealliance/

LinkedIn: https://www.linkedin.com/company/gorlin-syndrome-alliance/

YouTube: https://www.youtube.com/channel/UCiTxasm3r792QF3WNz3DV6w

 

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