Rare Disease Day (February 28, 2025) is an internationally recognized awareness initiative held annually on February 28. It is dedicated to raising global awareness for the more than 300 million people living with rare diseases, including those with rare dermatological conditions. Established in 2008 by EURORDIS-Rare Diseases Europe and its Council of National Alliances, the day aims to bring attention to the unique challenges faced by rare disease patients — with a particular focus on reaching policymakers, healthcare professionals, researchers, and the general public.
For GlobalSkin and the RareDERM Community - a network of over 153 patient organizations representing approximately 29 rare dermatological diseases across all six WHO regions. Rare Disease Day is a powerful opportunity to spotlight the burden of rare skin diseases and advocate for better recognition, research, and resources globally.
2026 Campaign Resources - COMING SOON!
Check out our previous campaign!
GlobalSkin's 2025 Rare Disease Day campaign reached approximately 3.1 million people globally, achieved about 83,000 engagements (likes, shares, etc.), and led to over 22,500 website visits in February 2025.
Through this combined effort - global coordination by Members via social media, local projects and activities, personal stories, social-media amplification, and public visibility - the campaign helped push rare dermatological diseases into broader public awareness and advocacy.
Get inspired by Member projects!
We also supported 17 patient organizations in their Rare Disease Day campaigns through the Rare Disease Day Fund. This initiative was designed to empower rare disease communities and amplify their voices. By providing targeted funding and resources, we helped to enable these organizations to lead impactful projects tailored to their unique needs. These initiatives helped raise public awareness, advocate for policy change, foster patient engagement, and deliver meaningful support to individuals and families affected by rare skin conditions.
Lived experiences - shared by our Members
As part of the Rare Disease Day 2025 campaign, we invited Members and their patients to share their personal experiences of living with a rare dermatological condition. The responses we received were truly inspiring, filled with bravery, perseverance, and hope. We sincerely thank everyone who participated! Click here to read thier stories.