GlobalSkin Membership Growth September 2024

As an international alliance, we are committed to the principles of diversity, equity, inclusion and belonging. We are striving to ensure patient organizations from all parts of the world are seen, heard and valued. Since January, GlobalSkin has welcomed twenty-seven new patient organizations to our organization, bringing our membership to 284 Member organizations, representing 59 disease areas and 70 countries.

We extend a special welcome to our new Members:

  • Pemphigus und Pemphigoid Selbsthilfegruppe e.V. (Germany)
  • Rare Disease Ghana Initiative (Ghana)
  • Amore en la Piel (Costa Rica)
  • SADA (Severe Atopic Dermatitis Association) Korea (Korea)
  • MASSE World, (USA)
  • International Association of Hidradenitis Suppurativa Network (USA)
  • Standing Voice (Malawi)
  • Hidradenitis Suppurativa Australia (Australia)
  • The UK Mastocytosis Support Group, UK
  • Fundación Mexicana de Vitiligo y Enfermedades de la Piel (Mexico)
  • Albína, (Czech Republic)
  • Rare Disorders Kenya (Kenya)
  • Psoriasis Association of Ghana (Ghana)
  • Ectodermal Dysplasias International Network (France)
  • The Ehlers-Danlos Society (UK)
  • Community health Development and Malaria Control Association (Ethiopia)
  • Cure EB (UK)
  • Psoriasis Indonesia (Yayasan Bercak Merah Indonesia - YBMI) (Indonesia)
  • Live Together as Family Association (L-TOFA) (Burundi)
  • Stowarzyszenie Debra Polska Kruchy Dotyk (Poland)
  • Chinese Organization for Scleroderma (China)
  • Caring Matters Now (UK)
  • Childhood Tumour Trust (UK)
  • AsoNevus - Asociación Española de Nevus Gigante Congénito (Spain)
  • My Skin Global (USA)
  • Psoriatic Disease UK (UK)
  • Psoriasis Association of Singapore (Singapore)

To help us maintain this membership growth momentum throughout 2024, please connect us with patient organizations in your disease or country who might be interested in becoming members. Please contact This email address is being protected from spambots. You need JavaScript enabled to view it. with any suggestions or leads you may have.

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