The Value of Patient Expert Training: Understanding the How, What and Why of the Continuous Learning Series

July 7, 2021

10:00 am - 11:00 am Eastern Dayling Time Canada/US (EDT)*

16:00 - 17:00 Central European Summer Time (CEST)*

*For a time in your timezone, click here.

As a patient leader, you bring vast knowledge and perspective to all you do.

Take your expertise to the next level through the EUPATI Patient Expert Training Programme, a unique opportunity that offers patients and patient advocates expert-level training in medicines research and development (R&D).

Following the presentation at the GlobalSkin Virtual Conference, we are pleased to welcome back Maria Durate, Executive Director of EUPATI and her colleague, Ieva Lūkase, Reload and Open Classroom Coordinator, for an in-depth presentation of the EUPATI programme. Natacha Vaz Liti and Marc van Grieken, two EUPATI Fellows (graduates of the program), will join the presentation to share their learning experiences and professional opportunities as a result of the Patient Leader Expert Training Programme. Other topics we will discuss in this information session include:

• A live demonstration on how to navigate the EUPATI Open Classroom website
• Details of the Learning Journey and the three Learning Pathways
• How to register in the Continuous Learning Series and how GlobalSkin will faciliate your participation

We look forward to your participation in this webinar. GlobalSkin is proud to support our dermatology patient leaders as professional patient advocates.

Maria Dutarte. Maria joined EUPATI in 2020 and is the Executive Director of the EUPATI Foundation. She oversees the EUPATI Secretariat and the different workstreams. She has previously worked as a Project Manager at the European AIDS Treatment Group (EATG) coordinating patient involvement in a number of training initiatives and scientific projects. Maria has also worked for different scientific and international organisations. Her educational background is in International Education and Communications.

Ieva Lūkase. Ieva joined EUPATI in June 2021 and coordinates the Open Classroom learning platform. Her professional background includes training design, facilitation and coordination, and learning & development projects at international education and non-profit organizations. Ieva has a Master’s Degree in Education Science with the focus on inclusion and diversity.

Natacha Vaz Liti. EUPATI Fellow. Natacha advocates for people affected by Melanoma and founded the Associação Melanoma Portugal, a non-profit organization that aims to improve the life of melanoma patients in Portugal – www.melanomaportugal.pt. Her journey as a Patient Advocate started in 2016 when her brother was diagnosed with mucosal melanoma. Natacha is a graduate in Oncobiology, has a master's degree in Science Communication and works in Clinical Research.

Marc van Grieken. EUPATI Fellow. Marc grew up in the Netherlands where he studied landscape architecture and graduated in 1983. He lives in Scotland since 1984 and has predominantly worked on landscape and visual aspects of renewable energy schemes, in particular of windfarms. He was diagnosed with Parkinson’s in 2005/6 but only much more recently become active in ‘patient advocacy’, promoting awareness and research. He chairs the Dundee Research Interest Group (DRIG) of Parkinson’s UK and the Research Arm of the PD Avengers. In 2019 he applied for a place on the training course “Patient Expert Training Course on Medicine Research and Development” from the European Patient Academy for Therapeutic Innovation (EUPATI) . He was enrolled in Cohort 4 of the course starting and graduated in March 2021as a EUPATI Fellow.

The European Patients’ Academy on Therapeutic Innovation (EUPATI) is a multi-stakeholder public-private partnership originally launched by the IMI-EUPATI project (2012-2017) and hosted by the European Patients’ Forum (EPF) from 2017 to 2020. EUPATI is today established as an independent non-profit Foundation in the Netherlands. It is a successful programme that provides education and training to increase the capacity and capability of patients and patient representatives to understand and meaningfully contribute to medicines research and development (R&D), and to improve the availability of medical information for patients and other stakeholders.

It does so by conducting its established Patient Expert Training Programme which has trained more than 200 Patient Experts (EUPATI Fellows), and with 200 more currently enrolled via the EUPATI Open Classroom. In addition, EUPATI provides an open-access multilingual Toolbox that has served more than 4 million users in 13 languages around the world to date.