Supporting dermatology patient organizations is paramount to GlobalSkin. During these uncertain times of the COVID-19 pandemic, we are working to develop strategies to support our Members in their work.
We have compiled a list of resources related to the pandemic from sources including the World Health Organization, dermatological associations, and patient organizations. Information is organized by general dermatological and health information as well as by disease area.
A special Organizational Capacity section also lists resources for the new working from home environment as well as a self care tips during this unprecedented time.
This list will be updated on an ongoing basis.
GlobalSkin COVID-19 Virtual Townhalls
During the last several months of the pandemic, GlobalSkin has collaborated with experts in various fields of study including behavioural medicine, dermatology and pediatric dermatology to offer a series of webinars related to COVID-19. In conjunction with our esteemed colleagues at the International League of Dermatological Societies (ILDS), Cardiff University, Pediatric Dermatology Research Alliance (PeDRA) and the International League of Dermatological Societies (ILDS) we have offered dermatology patient organization leaders the opportunity to hear first hand the latest research and information on the coronavirus and how it affects dermatology patients.
Important Role of Nurses in the Management and Overall Medical Pathways of Dermatological Patients.
November 12, 2020
A joint webinar with GlobalSkin and , "The Important Role of Nurses in the Management and Overall Medical Pathways of Dermatological Patients”. An integral part of the patient journey are nurses and nurse practitioners - as it was highlighted throughout the COVID-19 crisis.
The Psycho-Social Impacts of COVID-19 on Patients with Chronic Skin Conditions.
October 7, 2020
GlobalSkin Covid-19 Virtual Townhall in collaboration with the .
Join our expert, Dr. Patrick Kemperman, from the Academic Medical Center in Amsterdam who will share his insights in psychodermatology.
Impacts of COVID-19 on Children with Dermatological Disease
June 30, 2020
In collaboration with with experts from the ), GlobalSkin hosted a webinar focusing on pediatric dermatology with – Professor of Dermatology at UCSF and Chair of the Pediatric Dermatology COVID-19 Response Task Force – and – Chair of Dermatology at Northwestern and PeDRA Co-Founder.
Impacts of Covid-19 on Autoimmune Diseases & Immune Suppressed Patients
July 30, 2020
GlobalSkin Covid-19 Virtual Townhall in collaboration with the .
Join Dr. Bing Thio, MD, PhD - dermatologist consultant at the Department of Dermatology, Erasmus Medical Centre, Rotterdam, The Netherlands.
Understanding COVID-19 & Its Impacts on Dermatology Patients
May 21, 2020
In conjunction with the , GlobalSkin hosted a webinar with MD, Ph.D., DTM&H, Assistant Professor of Dermatology at Harvard Medical School and a board-certified dermatologist.
Supporting Patients and Caring for Ourselves in a COVID-19 World
April 8, 2020
- Professor of Behavioural Medicine at Cardiff University presents on how patient organization leaders can help address questions & concerns posed by patients during the pandemic.
COVID-19 Registries in Dermatology
|
Project |
Disease area |
|
PsoProtect Me |
|
| SECURE-AD Patient Registry |
The is designed to help understand how the coronavirus pandemic (COVID-19) affects people with atopic dermatitis (also called atopic eczema). |
Disease Specific Resources from GlobalSkin Members
|
Source |
Link |
Language |
Original Publication Date |
||
| Canadian Skin Patient Alliance (CSPA) | English (Canada) | Continued updates | |||
|
Irish Skin Foundation |
|
English (Ireland) |
Continued updates |
||
Dermatology Community
|
Source |
Link |
Language |
Original Publication Date |
|
International League of Dermatological Societies (ILDS) |
English |
April 2020 |
|
|
American Association of Dermatology (AAD) |
English (USA) |
Continued Updates |
|
|
British Association of Dermatologists |
English (UK) |
April 2020 |
|
|
Canadian Dermatology Association (CDA) |
English (Canada) |
April 2, 2020 |
|
|
European Academy of Dermatology and Venereology (EADV) |
English |
Continued updates |
Patient Alliance Organizations (non-dermatology)
|
Source |
Link |
Language |
Original Publication Date |
|
International Alliance of Patients' Organizations (IAPO) |
English |
Continued updates |
|
|
European Patient Forum (EPF) |
English |
Continued updates |
General Health Information
|
Source |
Link |
Language |
Original Publication Date |
|
World Health Organization (WHO) |
Multi-lingual |
Continued updates |
|
|
European Centre for Disease Prevention and Control |
English |
March 2020 |
|
|
Centers for Disease Control and Prevention (CDC) |
English (USA) |
Continued updates |
Organizational Tools
|
Source |
Link |
Language |
Original Publication Date |
|
Working Remotely |
|||
|
Just Giving Blog |
English |
March 25, 2020 |
|
|
Communicating Best Practices |
|||
|
Zoom |
*security concerns given increased usership |
English |
N/A |
|
Google Hangouts |
English |
N/A |
|
|
Microsoft Teams |
English |
March 26, 2020 |
|
|
Avaya |
English |
March 5, 2020 |
|
|
Cisco Webex |
English | N/A | |
Personal and Family Well-Being
|
Source |
Link |
Language |
Original Publication Date |
|
UNICEF |
English |
March 10, 2020 |
|
|
World Health Organization (WHO) |
Multi-lingual |
N/A | |
|
Centre for Addiction for Mental Health |
English/French (Canada) |
N/A | |
|
Thrive Global |
English |
April 6, 2020 |
|
|
United Nations (UN) |
English |
N/A | |
| National Eczema Association | English | N/A | |
| Center for Disease Control (CDC) | English | N/A |