GlobalSkin brings Patient perspective to key high-level committees
GlobalSkin has been invited to sit on the International Rare Diseases Research Consortium (IRDiRC) Chrysalis Project Task Force, as one of only two patient advocate representatives.
The overarching goal of this project is to identify key criteria that would make rare diseases research more attractive to industry for research and development. The task force will serve as a critical link between industry, funders, and advocates in accomplishing the objectives of the Chrysalis Project:
Identify key criteria that would make rare diseases research more attractive to industry for research and development.
Identify gaps in the current funding opportunity landscape to develop the criteria identified in #1.
Identify other non-financial barriers related to the attractiveness of meeting the criteria identified in #1