Naevus Global has a new website! Now with a section that identifies different countries where there is information provided about Congenital Melanocytic Naevus (CMN). Now, visitors can connect by country through patient organizations, Facebook groups, WhatsApp groups, or a single contact. Keep your eye on this section as the network continues to grow!
There is also a new page providing documents like a list of books or people who have written a book on their experience living with Congenital Melanocytic Naevus (CMN), a photo gallery, and a video gallery.
Also on the new website, Naevus Global has created and shared a visual patient journey for those living with Congenital Melanocytic Naevus (CMN) that was presented on a poster at The European Conference on Rare Diseases & Orphan Products (ECRD) in May 2020 (ECRD). You can find the poster HERE.
Naevus Global is also participating in research patient-reported outcomes for Congenital Melanocytic Naevus. The project is named The Outcomes for Congenital Melanocytic Naevi (OCOMEN) Project and has its first publication available to read now! Learn more about OCOMEN HERE.