EADV Congress 2023
The 32nd European Academy of Dermatology and Venereology (EADV) Congress was held in Berlin, Germany from October 11-14, 2023. Our delegation included Board Directors Marc Yale and David McMahon along with senior GlobalSkin staff Visnja Zaborski Breton, Tammi Shipowick, Allison FitzGerald and Strategic Partnerships Manager Jakub Sadocha. Together with many Member organizations, we amplified the patient perspective. Our presence was marked by meaningful interactions with doctors, stakeholders, dermatology societies, and attendees through a series of engaging events that resonated with the audience.
Highlights of our time in Berlin included the following:
GlobalSkin hosted an exclusive workshop titled “Building Stronger Bonds: Fostering Effective Partnerships between Patient Organizations and Pharma Industry” for its European community. Facilitated by Dr. Tamás Bereczki, the workshop equipped attendees with a plethora of insights vital for forging robust alliances with stakeholders in the pharma sector.
In addition, we hosted our “Skin Matters Reception” where we focused on the work GlobalSkin is undertaking to elevate the understanding and prioritization of dermatological diseases. Special remarks were given by Prof. Henry Lim, President of the International League of Dermatological Societies (ILDS), Prof. Matthias Augustin from Hamburg University, and GlobalSkin's Board President, Marc Yale. Their views were well-received by members, partners, and guests alike.
GlobalSkin also co-chaired a Joint Session with the EADV Patient Advocacy Task Force on "How Collaboration Improves Access to Care”. This was the 7th occasion GlobalSkin co-organized a session with Task Force, highlighting the longstanding association. The session provided a platform for patient organizations and dermatologists to share real-world examples of their collaborative endeavors. The presentations from patient organizations were extremely insightful, offering a grounded understanding of the challenges faced by patients and the solutions that can be created through concerted efforts.
Alongside the ILDS and the EADV, GlobalSkin co-hosted a summit centered on the theme, "Occupational and Non-occupational Skin Cancer: A Persisting Global Burden". The summit highlighted the urgent need for action against skin cancer, emphasizing the vital role stakeholders play in this regard. Marc Yale, along with representatives from the International Pemphigus & Pemphigoid Foundation and the Global Albinism Alliance, brought forth the patient's perspective, driving home the importance of awareness and prevention.
GlobalSkin made its presence felt in the Patient Organization Area as well throughout the Congress, offering an opportunity for attendees to engage in meaningful dialogue and establish connections with the organization’s representatives. With various patient organizations also present, the area became a hub of shared experiences, knowledge exchange, and collaborative discussions.
The GRIDD Research project poster was also showcased by GlobalSkin in the E-Poster Area of the Congress, allowing attendees to understand the research's significance and discover how they could contribute.
In reflecting on the 32nd EADV Congress, GlobalSkin's active role and collaborative spirit were unmistakably evident, reinforcing the essence of cohesion, information sharing, and proactive advocacy in advancing dermatological care and patient well-being on a global scale.
Policy Roundtable: Addressing the Burden of Skin Disease in Europe through Policies and Partnerships
EADV’s Policy Roundtable took place on 8th September, and brought together dermatologists, patient organisations, industry, the World Health Organisation, European Commission and European Parliament for a solution-oriented discussion on the actions needed to tackle skin diseases in the EU.
GlobalSkin CEO Jennifer Austin presented on the GRIDD Project. Click here for a synopsis of the policy roundtable event.
European Academy of Dermatology and Venereology (EADV) Congress
GlobalSkin was excited to be a part of the European Academy of Dermatology and Venereology (EADV) Congress in Milan this September (7-10).
GlobalSkin believes that Patient Leaders are a wealth of ideas and expertise, and Members who were present at EADV Congress were invited to a GlobalSkin-Europe session, Pitching the Next Great Idea.
Presenting Members come prepared to share one of their success stories, an innovative idea and/or best practice with colleagues. Presenters had 5-7 minutes to pitch their ideas and answer questions.
This Member event was followed by a GlobalSkin reception.
GlobalSkin attended the EADV’s 30th Anniversary Congress which took place on September 29-October 2, 2021. For the fifth consecutive year, GlobalSkin and the EADV Patient Working Group have co-organized a special joint session. This year’s topic is “Physical and Emotional Pain of Dermatological Conditions: Helping You Support Your Patients”, and is taking place on October 2, 2021 - 10:00-12:15 CET. All patient organizations & attendees are invited to attend.
We are excited to have the GRIDD project featured on October 2 during the Open Communication Poster Presentation during this year’s congress. Rachael Pattinson, GRIDD researcher from Cardiff University will present: “Development of the Patient-Reported Impact of Dermatological Disease (PRIDD) Measure: A Concept Elicitation Study."
As of February 2022, GlobalSkin is a signatory to the EADV Joint Statement on skin cancer prevention in the context of the European Union’s Beating Cancer Plan.
In 2020, GlobalSkin was invited to sit on the European Academy of Dermatology and Venerology (EADV) Patient Association Working Group (PAWG), as the first patient organization representative. This is a testament to the positive working relationship that has been developing between the organizations for some time. It also speaks to the connectedness of GlobalSkin to the European dermatology patient community which makes up just over half of our membership.
GlobalSkin Executive Director Jennifer Austin is actively engaged on the PAWG in planning the annual jointly organized special interest session (focused on patients) at the EADV’s Annual Congress.
Jennifer has also been providing advice on the EADV’s Patient Corner website page to ensure it is inviting and supportive from a patient perspective.
In 2020, GlobalSkin also launched a COVID Townhall Series; these webinars were focused on how the coronavirus was affecting dermatology and dermatology patients. Working with stakeholders like the EADV to bring expert presenters together to share their knowledge and research with GlobalSkin Members. Click here to learn more.
EADV Newsletter featuring work with GlobalSkin
2020 Virtual Congress
GlobalSkin was present for the fifth year in a row at the European Academy of Dermatology and Venereology (EADV) Congress. On October 30, 2020, Christine Janus, GlobalSkin CEO had the privilege of giving a plenary presentation directly to the EADV membership and Congress attendees. Her presentation, “A Shared Vision: Changing the Way the World Sees Dermatology”, was the first plenary presentation given by a dermatology patient advocate during the main Congress.
Other Congress Highlights:
- Watch the EADV Faculty Highlights video here to learn the key messages that were part of the plenary presentation.
- Plenary Session Presentation, by Christine Janus on Patient-Reported Outcomes – “What matters to patients? A Patient’s Perspective”.
- 4th annual special joint session co-organized by GlobalSkin and the EADV Patient Group on “Improving Your Patient Reviews Through Patient Satisfaction”. This multi-disciplinary event took place October 30 and featured four patient organization leaders (including GlobalSkin President Simmie Smith and Christine Janus), clinicians, psychologists and, a dermatology nurse association representatives
- GRIDD scientific poster – an audio presentation of the latest phase of GRIDD was available in the e-poster area.
- GlobalSkin Booth – a 3D virtual booth was created as part of the Patient Village at the EADV Congress.
Other areas of collaboration between GlobalSkin and the EADV are in progress and there will certainly be more to come from this important relationship.