COVID-19 Resources for Dermatology Patient Organizations

Supporting dermatology patient organizations is paramount to GlobalSkin. During these uncertain times of the COVID-19 pandemic, we are working to develop strategies to support our Members in their work.

We have compiled a list of resources related to the pandemic from sources including the World Health Organization, dermatological associations, and patient organizations.  Information is organized by general dermatological and health information as well as by disease area.

A special Organizational Capacity section also lists resources for the new working from home environment as well as a self care tips during this unprecedented time.  

This list will be updated on an ongoing basis.

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GlobalSkin COVID-19 Virtual Townhalls

During the last several months of the pandemic, GlobalSkin has collaborated with experts in various fields of study including behavioural medicine, dermatology and pediatric dermatology to offer a series of webinars related to COVID-19. In conjunction with our esteemed colleagues at the International League of Dermatological Societies (ILDS), Cardiff University and Pediatric Dermatology Research Alliance (PeDRA) we have offered dermatology patient organization leaders the opportunity to hear first hand the latest research and information on the coronavirus and how it affects dermatology patients.

The Psycho-Social Impacts of COVID-19 on Patients with Chronic Skin Conditions.

October 7, 2020

GlobalSkin Covid-19 Virtual Townhall in collaboration with the European Academy of Dermatology and Venereology (EADV).

Join our expert, Dr. Patrick Kemperman, from the Academic Medical Center in Amsterdam who will share his insights in psychodermatology. 

Impacts of Covid-19 on Autoimmune Diseases & Immune Suppressed Patients

July 30, 2020

GlobalSkin Covid-19 Virtual Townhall in collaboration with the European Academy of Dermatology and Venereology (EADV).

Join Dr. Bing Thio, MD, PhD - dermatologist consultant at the Department of Dermatology, Erasmus Medical Centre, Rotterdam, The Netherlands.

Impacts of COVID-19 on Children with Dermatological Disease

June 30, 2020

In collaboration with with experts from the Pediatric Dermatology Research Alliance (PeDRA), GlobalSkin hosted a webinar focusing on pediatric dermatology with Kelly Cordoro, MD – Professor of Dermatology at UCSF and Chair of the Pediatric Dermatology COVID-19 Response Task Force – and Amy Paller, MD – Chair of Dermatology at Northwestern and PeDRA Co-Founder.

 

Understanding COVID-19 & Its Impacts on Dermatology Patients

May 21, 2020 

In conjunction with the International League of Dermatological Societies (ILDS), GlobalSkin hosted a webinar with Esther E. Freeman MD, Ph.D., DTM&H Assistant Professor of Dermatology at Harvard Medical School and a board-certified dermatologist.

 

 

Supporting Patients and Caring for Ourselves in a COVID-19 World

April 8, 2020

Christine Bundy PhD, AFBPS, CPsychol - Professor of Behavioural Medicine at Cardiff University presents on how patient organization leaders can help address questions & concerns posed by patients during the pandemic.

 

COVID-19 Registries in Dermatology

Patient Reporting Registries

Project

Disease area

PsoProtect Me

How does COVID-19 affect people living with psoriasis

SECURE-AD Patient Registry

The SECURE-AD Patient survey is designed to help understand how the coronavirus pandemic (COVID-19) affects people with atopic dermatitis (also called atopic eczema).

Disease Specific Resources from IADPO Members

All Skin Diseases

Source

Link

Language

Original Publication Date 

Canadian Skin Patient Alliance (CSPA) COVID-19 – Education English (Canada) Continued updates

Irish Skin Foundation 

Information of Covid-19 and skin conditions

English (Ireland)

Continued updates

Dermatology Community

Dermatology Associations

Source

Link

Language

Original Publication Date

International League of Dermatological Societies (ILDS)

COVID-19 Information

English

April 2020

American Association of Dermatology (AAD)

COVID-19 Coronavirus Resource Centre

English (USA)

Continued Updates

British Association of Dermatologists
(BAD)

COVID-19 Patient Information

English (UK)

April 2020

Canadian Dermatology Association (CDA)

COVID-19 Patient Updates

English (Canada)

April 2, 2020

European Academy of Dermatology and Venereology (EADV)

COVID-19

English

Continued updates

Patient Alliance Organizations (non-dermatology)

Patient Resources

Source

Link

Language

Original Publication Date

International Alliance of Patients' Organizations (IAPO)

Coronavirus (COVID-19) Resource Hub

English

Continued updates

European Patient Forum (EPF)

COVID Resource Point

English

Continued updates

General Health Information

Public health information about the pandemic

Source

Link

Language

Original Publication Date

World Health Organization (WHO)

Coronavirus disease (COVID-19) Pandemic

Multi-lingual

Continued updates

WHO Health Alert brings COVID-19 facts to billions via WhatsApp

WHO Training for Coronavirus Disease Outbreak

European Centre for Disease Prevention and Control

Q&A on COVID-19

English

March 2020

Centers for Disease Control and Prevention (CDC)

Coronavirus (COVID-19)

English (USA)

Continued updates

Organizational Tools

Working Remotely / Communications Best Practices

Source

Link

Language

Original Publication Date

Working Remotely

Just Giving Blog

COVID-19: 10 tips for working from home

English

March 25, 2020

Communicating Best Practices

Zoom

Learn More about Zoom video conferencing 
*security concerns given increased usership

English

N/A 

Google Hangouts

Video meetings for your business

English

N/A  

Microsoft Teams

Manage the Office 365 E1 Trial

English

March 26, 2020

Avaya

Avaya Spaces Collaboration App Offered Free to Help During the Coronavirus Outbreak

English

March 5, 2020

Cisco Webex

Cisco Webex Available Free in These Countries (COVID-19 Response)

English   N/A 

Personal and Family Well-Being

Tools and Resources

Source

Link

Language

Original Publication Date

UNICEF

How to talk to your child about coronavirus disease 2019 (COVID-19)

English

March 10, 2020

World Health Organization (WHO)

Mental health and COVID-19 (Resource list)

Multi-lingual

 N/A

Centre for Addiction for Mental Health

Mental Health and the COVID-19 Pandemic

English/French (Canada)

 N/A

Thrive Global

I Lived Through Burnout. Here’s What I’ve Learned About Managing Stress So You Don’t Have to Reach That Point During These Uncertain Times.

English

April 6, 2020

United Nations (UN)

Wellbeing tips for UN Personnel – Guided meditation and yoga (audio)

English

N/A 
National Eczema Association Parenting through the pandemic English N/A
Center for Disease Control (CDC) Stress and Coping English N/A