A key component of GlobalSkin's mission is to build connections and opportunities for collaboration within the dermatology community. Bringing the patient perspective to the forefront is top of mind for GlobalSkin's Leadership Team and Board of Directors. As part of GlobalSkin's reach and expertise, representatives have been invited to sit on several key committees, working groups and task forces.
A key component of GlobalSkin's mission is to build connections and opportunities for collaboration within the dermatology community. Bringing the patient perspective to the forefront is top of mind for GlobalSkin's Leadership Team and Board of Directors. As part of GlobalSkin's reach and expertise, representatives have been invited to sit on several key committees, working groups and task forces.
GlobalSkin has transitioned from being an Observer Member to becoming a Full Member of the Patient and Consumer Working Party (PCWP) at the European Medicines Agency as of April 2024. We're enthusiastic about our increased involvement in this major European regulatory body and are committed to contributing even more actively as Full Members of the PCWP. Read more about the status here.
In April 2024, GlobalSkin became a member of the NCD Alliance, a civil society network with 300+ members in 80 countries dedicated to improving noncommunicable diseases prevention and control worldwide. We look forward to connecting on and supporting efforts leading up to the Fourth High-level Meeting of the UN General Assembly on the Prevention and Control of NCDs and Mental Health in September 2025.
On March 25, 2024, GlobalSkin became an associate member of EURODIS, a unique alliance of over 1000 rare disease patient organisations from 74 countries that work together to improve the lives of over 300 million people living with a rare disease globally. GlobalSkin aims to aid in strengthening the patient voice and help shape research, policies and patient services as part of this membership.
Other Committee Memberships Include:
- RDI--WHO Collaborative Global Network for Rare Diseases Programme (CGN4RD)
- In 2021, Rare Diseases International launched CGN4RD Panel of Experts, an inclusive and global body composed of patient advocates, clinicians, researchers and health professionals from all six WHO regions.
The Panel of Experts will provide input to help the WHO Collaborative Global Network Programme develop pilots that address the shared and specific challenges of people living with a rare disease around the world.GlobalSkin Programs Director Tammi Shipowick and Board Treasurer Marc Yale (International Pemphigus & Pemphigoid Foundation (IPPF), will participate on this panel.
- In 2021, Rare Diseases International launched CGN4RD Panel of Experts, an inclusive and global body composed of patient advocates, clinicians, researchers and health professionals from all six WHO regions.
- Global Psoriasis Coalition - A program of the International Federation of Psoriasis (IFPA), inspired by developments in the non-communicable diseases (NCD) policy agenda that calls on civil society to advocate for a people-centered and integrated response to psoriasis.
- PeDRA Patient Advisory Committee - The charge of the Pediatric Dermatology Research Alliance Patient Advisory Committee (PeDRA-PAC) is to inject the perspectives and priorities of patients and parents into PeDRA’s research activities, and to identify high-priority, cross-disease studies to be pursued by PeDRA investigators.
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A new research paper (Nov 2022) has been published on our recent collaborative work. View the publication here.
- The Committee created a poster about their efforts which was shared during PeDRA's Annual Conference 2021. View the poster here.
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GlobalSkin is a Member of:
- International Alliance of Patient Organizations (IAPO)
- European Patients Forum (EPF)
- Rare Disease International (RDI)
- Global Genes
- Coalition of Skin Diseases (CSD)
- World Patient Alliance
- EURORDIS
- NCD Alliance
A key component of GlobalSkin's mission is to build connections and opportunities for collaboration within the dermatology community. Bringing the patient perspective to the forefront is top of mind for GlobalSkin's Leadership Team and Board of Directors. As part of GlobalSkin's reach and expertise, representatives have been invited to sit on several key committees, working groups and task forces.
GlobalSkin Dermatology-Focused Collaborations
International League of Dermatological Societies (ILDS)
GlobalSkin maintains a multifaceted collaboration and partnership with the International League of Dermatological Societies (ILDS), working together across several key initiatives. Through a Memorandum of Understanding, the two organizations collaborate on strategic efforts that align their missions to elevate skin health worldwide. GlobalSkin is an active member of the Patient Organization Working Group, contributing advisory support to ensure that patient perspectives are reflected in ILDS’s work. Additionally, GlobalSkin participates in several ILDS committees, including the WCD Scientific Program Committee and the World Skin Summit Planning Committee, helping to bring the patient perspective to these dermatology events. GlobalSkin also promotes the ILDS’ World Skin Health Day initiative. Together we have advocated to the World Health Organization to elevate the prioritization of skin conditions in health policy, with a major milestone achieved with the adoption of the WHA Skin Diseases Resolution in May 2025.
Detailed ILDS link
European Academy of Dermatology and Venerology (EADV)
GlobalSkin collaborates closely with the European Academy of Dermatology and Venereology (EADV) through multiple engagement streams. Since 2018, we have co-organized a Special Interest Session as part of the scientific program of the EADV Congress. As a member of the Patient Advocacy Taskforce, GlobalSkin contributes to strategic discussions and planning on patient-centric activities and education for EADV Members, ensuring that the patient perspective is considered and showcased. In addition, GlobalSkin is an Ambassadorsupporting the mission of the Advocacy Task Force, aimed at strengthening the role of patient voices in dermatological advocacy across Europe. GlobalSkin has been a signatory onf several EADV policy statements and initiatives. Detailed EADV link
EFA
World Atopic Eczema Day (September 14) was launched in 2018 to raise awareness about this condition, its burdens and the impact on people living with atopic eczema along with their families and caregivers. Thisinitiative,co-founded and coordinated by GlobalSkin and the European Federation of Allergy and Airways Diseases Patients’ Associations (EFA), raises awareness globally and in Europe. Each year we collaborate on the development a Campaign Toolkit, which includes key messages, graphics and other useful resources. These tools are shared with ourpatient organization members and other stakeholders and are available on our websites leading towards a united awareness day. Learn more about this year's World Atopic Eczema Day Campaign.
Other Dertmatology Focused Collaborations
Pediatric Dermatology Research Alliance (PeDRA)
GlobalSkin collaborates with the Pediatric Dermatology Research Alliance (PeDRA) through a co-creative partnership focused on amplifying patient and caregiver perspectives in pediatric dermatology research. A key element of this collaboration is the PeDRA Patient Advisory Committee (PeDRA-PAC), whose charge is to inject the priorities of patients and parents into PeDRA’s research agenda while helping identify high-priority, cross-disease studies for PeDRA investigators to pursue. GlobalSkin contributes to this committee and plays an active role in shaping collaborative outputs.
International Dermatology Outcome Measures (IDEOM)
GlobalSkin is a proud member of the International Dermatology Outcome Measures (IDEOM) initiative. Through this membership, GlobalSkin contributes to IDEOM’s mission of establishing and validating standardized outcome measures that matter most to patients, clinicians, and researchers in dermatology. This collaboration ensures that patient voices are meaningfully integrated into the development of tools that assess treatment effectiveness and impact, ultimately advancing patient-centered care in dermatology.
Coalition of Skin Diseases (CSD)
GlobalSkin is a member of the Coalition of Skin Diseases (CSD), a collective of patient advocacy organizations dedicated to improving the lives of individuals affected by skin conditions. As part of this membership, GlobalSkin collaborates with like-minded groups to raise awareness, influence research priorities, and advocate for better access to care.
IFPA Coalition
GlobalSkin sits on theIFPA Coalition which focuses on advancing global policy initiatives aimed at improving the lives of people living with psoriasis. By bringing the skin patient perspective to the table, GlobalSkin helps shape advocacy strategies and policy recommendations that support access to care, reduce stigma, and promote integrated, patient-centered approaches to managing psoriasis worldwide.