Monthly Archive

12 Jul

Meet the Member

7541

2 min read

Vitiligo Group Kenya (VGKe*)

Member since: May 2020 Vitiligo Group Kenya (VGKe*) was established in November 2019 in Nairobi Kenya. The organization advocates for: Non-discrimination of people living with vitiligo Full &a... read more..

15 Jun

GlobalSkin’s COVID-19 Response

Statement from the Board President Dear Members, Partners and other valued stakeholders: As you know, COVID-19 has significantly impacted how organizations operate all around the world. Many... read more..

15 Jun

Meet the Member

4347

2 min read

National Foundation for Ectodermal Dysplasias (NFED)

GlobalSkin Member since: May 2020 National Foundation for Ectodermal Dysplasias (NFED) is an international organization representing 7100 individuals from 85 countries, and serve their community thro... read more..

10 Jun

Committee

7058

<1min

GlobalSkin Joins PsoProtect Steering Committee

PsoProtect is a registry for health care professionals to report cases of COVID-19, and PsoProtectMe is for people with psoriasis – whether or not they have had COVID-19. Both registries ai... read more..

10 Jun

GlobalSkin joins industry panel on recent NEXT Pharma Summit Webinar

GlobalSkin participated in a NEXT Pharma Summit Webinar on May 27th entitled, Building Virtual Digital Communities for Rare Diseases. Because of the work we have been doing with the global rare derma... read more..

30 Mar

COVID-19 Resources for Dermatology Patient Organizations

Supporting dermatology patient organizations is paramount to GlobalSkain. We are working to develop strategies to support our Members in their work during these uncertain times of the COVID-19 pandemi... read more..

05 Dec

Blog

2437

10 min read

GlobalSkin at the 2022 EADV Congress

The European Academy of Dermatology and Venereology (EADV) Congress 2019 in Madrid was the fifth Congress that GlobalSkin Board Directors and senior staff have attended since our inception read more..

05 Dec

Blog

5309

4 min read

GlobalSkin at the 2019 EADV Congress

The European Academy of Dermatology and Venereology (EADV) Congress 2019 in Madrid was the fifth Congress that GlobalSkin Board Directors and senior staff have attended since our inception read more..

04 Oct

Blog

4105

<1min

GlobalSkin headed to the EADV Congress 2019

GlobalSkin at the EADV Congress 2019, Madrid Sapin - October 9-13, 2019 Visit IADPO at the Patient Society Village, October 10 and 11 in Hall 9 of the IFEMA Congress Centre. Join us at... read more..

24 Sep

GS 2019 Content

4365

<1min

GlobalSkin 2019 Conference Photos and Videos

GlobalSkin 2019 Conference Recap

This past June, GlobalSkin brought together over 120 skin patient group leaders from 35 countries in Milan for three unique events: the RareDERM Forum, the Atopic Eczema Forum and the GlobalSkin 2019 ... read more..

26 Apr

GlobalSkin 2019 Conference

4382

2 min read

Hildy Gottlieb - GlobalSkin Conference Closing Keynote

Hildy Gottlieb is a social scientist and asker of powerful questions. She is the co-founder of Creating the Future, where she teaches people how to change the systems they find themselves in, all... read more..

27 Mar

GlobalSkin 2019 Conference

3740

<1min

Jitske Kramer - GlobalSkin 2019 Keynote Speaker

Jitske Kramer, Corporate Anthropologist, believes in a world that is safe for diversity. She is committed to helping leaders and organizations create environments with the right rhythm of power and read more..

17 Dec

Blog Archive

4448

2 min read

GlobalSkin is 100 Members Strong

GlobalSkin has just welcomed a very special new member - our 100th!! The honour of helping us achieve this important milestone goes to the Eczema Association of New Zealand! We are especially delight... read more..

10 Dec

News and Events

35529

4 min read

Events Listing

Following is a list of upcoming events that are relevant to our members. Events World Orphan Drug Congress (WODC) Europe – November 15-18, 2021 IAPO's 3rd Asia Pacific Patients C... read more..

28 Nov

Member Community

7790

13 min read

About GlobalSkin-Europe

GlobalSkin hosted a European Patient Organizations Community meeting on September 15, 2018, in Paris bringing together patient leaders from Europe to discuss challenges and opportunities currently fac... read more..

28 Nov

Blog Archive

5199

<1min

Policy Drivers in Atopic Eczema: Patient Leader Dialogue Report

GlobalSkin hosted a Patient Leader Dialogue Workshop on atopic eczema on September 13, 2018 in Paris, France. Moderated by Christine Janus, GlobalSkin’s CEO, the workshop was attended by patient ... read more..

28 Nov

About

92624

12 min read

Board of Directors

2025-2026 GlobalSkin and its activities are governed by a Board of Directors from around the world. This diverse team has the skills needed to lead a strong, sustainable, effective international orga... read more..

28 Nov

About

43135

3 min read

About GlobalSkin

People living with dermatological conditions face stigma, shame and other psychosocial challenges in addition to the physical symptoms of their disease. For many patients, this is a lifelong burden. A... read more..

28 Nov

About

1939

4 min read

About GlobalSkin

People living with dermatological conditions face stigma, shame and other psychosocial challenges in addition to the physical symptoms of their disease. For many patients, this is a lifelong burden. A... read more..

26 Nov

News and Events

36224

6 min read

GlobalSkin News

GlobalSkin Announcements GlobalSkin Launches Groundbreaking GRIDD Study - June 05, 2023 Global Dermatology Coalition Announced - May 25, 2022 BIG IDEAS CHALLENGE” CHAMPIONS PATIENT IDEAS FOR ECZE... read more..

26 Nov

Member Community

67339

6 min read

Join Our Member Community

Coming Soon! Apply for Membership Here GlobalSkin is a truly global alliance of not-for-profit patient organizations that serve people living with dermatological conditions or sk... read more..

16 Oct

Blog Archive

4297

2 min read

GlobalSkin at the EADV - Sept 2018

GlobalSkin Board Members Jean-Marie Meurant, David McMahon and Cheryl Talent, CEO Christine Janus, and GlobalSkin staff attended the European Academy of Dermatology and Venereology (EADV) Congres... read more..

16 Oct

Blog Archive

1955

3 min read

Letter from the President - Fall 2018

Dear Members and Stakeholders, With the arrival of autumn, GlobalSkin reaches another milestone by celebrating its third anniversary! Congratulations to our Members, Board of Directors, CEO and sta... read more..

30 Apr

Blog Archive

2430

2 min read

IADPO President's Message - Spring 2018

Dear Members & Stakeholders, Spring has arrived! With this season of growth and blooms our organization continues to do the same, with over 86 Members from across the globe joining our m... read more..

13 Mar

Blog Archive

2298

<1min

Member Testimonial: Genespoir (France)

Why do patient associations become members of GlobalSkin? Watch our latest video to see what Antoine Gliksohn from Genespoir (France) has to say. ... read more..

26 Jan

Blog Archive

2816

2 min read

GlobalSkin 2017 Conference Recap

White papers from GlobalSkin 2017 Following the successful Patient Perspectives Symposium held during our GlobalSkin2017 Conference in Geneva, IAPDO has written White Papers which reflect that di read more..

26 Jan

Blog Archive

5107

2 min read

IADPO President’s Message - Winter 2018

Dear Members & Stakeholders, Happy New Year! The Board of Directors and staff at IADPO hope that 2018 brings you joy, good health, peace and prosperity. We look forward to the upcomin read more..

15 Dec

Blog Archive

3576

<1min

Excellent Report on the Value of Patient Organizations

The European Patients Forum (EPF) recently published “The Added Value of Patient Organizations” which contains some excellent data they’ve collected from their members and insights about the value pat... read more..

29 Oct

Blog Archive

17781

2 min read

IADPO’s Scientific Session at the EADV Congress

IADPO was proud to co-organize and co-host an official scientific session at the European Academy of Dermatology and Venereology (EADV) Congress in Geneva this September. The session, “Changing the Wa... read more..

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