2020

05 Nov

Meet the Member

1838

PSOPortugal

Member Organization: PSOPortugal Member since: August 2020 Country: Portugal PSOPortugal is a non-profit organization created in 2005 by a group of psoriasis patients with the following o... read more..

15 Oct

About

9340

Collaborations

A key component of GlobalSkin's mission is to build connections and opportunities for collaboration within the dermatology community. Bringing the patient perspective to the forefront is top of mind f... read more..

14 Sep

Committee

5067

Chrysalis Project Task Force

GlobalSkin brings Patient perspective to key high-level committees GlobalSkin has been invited to sit on the International Rare Diseases Research Consortium (IRDiRC) Chrysalis Project Task Forc... read more..

08 Sep

Member Impact Fund

3070

GlobalSkin Member Impact Fund

This new fund has been created to financially assist Member organizations in the planning and implementation of activities supporting their dermatology patient-led initiatives. .sp-module.DefaultBann... read more..

12 Aug

GS 2019 Content

6034

Meet the Members

Introducing our new Meet the Member Series - a chance for us to get to know the various organizations that have recently joined the GlobalSkin community and learn about the incredible work they are do... read more..

23 Jul

Member Community

12044

RareDERM Community

.sp-module.DefaultBanner { display: none; } .sp-module.RareDermBanner { margin-top: 44px; } RareDERM Community Who: Patient organizations serving people living with rare/unco read more..

12 Jul

Meet the Member

5206

Vitiligo Group Kenya (VGKe*)

Member since: May 2020 Vitiligo Group Kenya (VGKe*) was established in November 2019 in Nairobi Kenya. The organization advocates for: Non-discrimination of people living with vitiligo Full &a... read more..

15 Jun

GlobalSkin’s COVID-19 Response

Statement from the Board President Dear Members, Partners and other valued stakeholders: As you know, COVID-19 has significantly impacted how organizations operate all around the world. Many... read more..

15 Jun

Meet the Member

2789

National Foundation for Ectodermal Dysplasias (NFED)

GlobalSkin Member since: May 2020 National Foundation for Ectodermal Dysplasias (NFED) is an international organization representing 7100 individuals from 85 countries, and serve their community thro... read more..

10 Jun

Committee

4647

GlobalSkin Joins PsoProtect Steering Committee

PsoProtect is a registry for health care professionals to report cases of COVID-19, and PsoProtectMe is for people with psoriasis – whether or not they have had COVID-19. Both registries ai... read more..

10 Jun

GlobalSkin joins industry panel on recent NEXT Pharma Summit Webinar

GlobalSkin participated in a NEXT Pharma Summit Webinar on May 27th entitled, Building Virtual Digital Communities for Rare Diseases. Because of the work we have been doing with the global rare derma... read more..

30 Mar

COVID-19 Resources for Dermatology Patient Organizations

Supporting dermatology patient organizations is paramount to GlobalSkain. We are working to develop strategies to support our Members in their work during these uncertain times of the COVID-19 pandemi... read more..

06 Mar

Blog

5881

IADPO Member Organization Contribution

Patient Associate Editors at the British Journal of Dermatology Patient engagement or patient participation is an important issue. I believe the motto is: “Nothing about us without us.” In his June 2... read more..

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