Monthly Archive

2020

Welcome to our Archives page. On this page you will find a total of 14 of our articles broken down into Months and Years.
Meet the Member
1308

PSOPortugal

Member Organization: PSOPortugal Member since: August 2020 Country: Portugal   PSOPortugal is a non-profit organization created in 2005 by a group of psoriasis patients with the following o... read more..
About
6322

Collaborations

A key component of GlobalSkin's mission is to build connections and opportunities for collaboration within the dermatology community. Bringing the patient perspective to the forefront is top of mind f... read more..
Latest News
1050

IADPO AGM 2020

If you missed the 2020 IADPO Annual General Meeting - get caught up now by watching the video. Thank you to all Members and Stakeholders who joined us for the International Alliance of Dermatology Pa... read more..
Committee
3536

Chrysalis Project Task Force

GlobalSkin brings Patient perspective to key high-level committees  GlobalSkin has been invited to sit on the International Rare Diseases Research Consortium (IRDiRC) Chrysalis Project Task Forc... read more..
Member Impact Fund
2569

GlobalSkin Member Impact Fund

This new fund has been created to financially assist Member organizations in the planning and implementation of activities supporting their dermatology patient-led initiatives. .sp-module.DefaultBann... read more..
GS 2019 Content
5055

Meet the Members

Introducing our new Meet the Member Series - a chance for us to get to know the various organizations that have recently joined the GlobalSkin community and learn about the incredible work they are do... read more..
Member Community
8519

RareDERM Community

.sp-module.DefaultBanner { display: none; } .sp-module.RareDermBanner { margin-top: 44px; } RareDERM Community Who: Patient organizations serving people living with rare/unco read more..
Meet the Member
3609

Vitiligo Group Kenya (VGKe*)

Member since: May 2020 Vitiligo Group Kenya (VGKe*) was established in November 2019 in Nairobi Kenya. The organization advocates for: Non-discrimination of people living with vitiligo Full &a... read more..
Latest News
875

GlobalSkin’s COVID-19 Response

Statement from the Board President   Dear Members, Partners and other valued stakeholders: As you know, COVID-19 has significantly impacted how organizations operate all around the world. Many... read more..
Meet the Member
2120

National Foundation for Ectodermal Dysplasias (NFED)

GlobalSkin Member since: May 2020 National Foundation for Ectodermal Dysplasias (NFED) is an international organization representing 7100 individuals from 85 countries, and serve their community thro... read more..
Committee
3179

GlobalSkin Joins PsoProtect Steering Committee

PsoProtect is a registry for health care professionals to report cases of COVID-19, and PsoProtectMe is for people with psoriasis – whether or not they have had COVID-19. Both registries ai... read more..
Latest News
1251

GlobalSkin joins industry panel on recent NEXT Pharma Summit Webinar

GlobalSkin participated in a NEXT Pharma Summit Webinar on May 27th entitled, Building Virtual Digital Communities for Rare Diseases. Because of the work we have been doing with the global rare derma... read more..
Latest News
11119

COVID-19 Resources for Dermatology Patient Organizations

Supporting dermatology patient organizations is paramount to GlobalSkain. We are working to develop strategies to support our Members in their work during these uncertain times of the COVID-19 pandemi... read more..
Blog
4924

IADPO Member Organization Contribution

Patient Associate Editors at the British Journal of Dermatology Patient engagement or patient participation is an important issue. I believe the motto is: “Nothing about us without us.” In his June 2... read more..
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